tag:blogger.com,1999:blog-9110153203470551170.post6102983265772009173..comments2023-11-05T01:13:16.257-08:00Comments on Cancer Banter: My name is Susan and I'm a Yahoo! Group junkieSusan Chttp://www.blogger.com/profile/12178330935523896363noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-9110153203470551170.post-4217405498024034692009-02-03T07:00:00.000-08:002009-02-03T07:00:00.000-08:00Hi Susan--I'm Jean from the National Bone Marrow T...Hi Susan--<BR/>I'm Jean from the National Bone Marrow Transplant Link, an organization which helps BMT patients and families cope with the challenges of transplant by providing vital information and personalized support services. We found your blog through Google blog alerts.<BR/>You might be interested in our programs, including Celebrating Second Birthdays, which honors BMT survivors on their transplant anniversary. Please visit our website, www.nbmtlink.org, for more information or email me at jeanjones@nbmtlink.org.<BR/>All the best,<BR/>JeanJeanhttps://www.blogger.com/profile/04280797504261842866noreply@blogger.comtag:blogger.com,1999:blog-9110153203470551170.post-74709766098729651892009-01-29T15:21:00.000-08:002009-01-29T15:21:00.000-08:00"support group for support group junkies" Ha! I ha..."support group for support group junkies" Ha! I haven't even told you about the three other groups (not medical related).<BR/><BR/>Margaret, I'm having the same problem. And then there's facebook and twitter and linked-in and God blogs and i-ms and all the other new ways we communicate these days. When my Internet's not working, my productivity goes up, not down.<BR/><BR/>Susie, you're right about the MCL group being a part of ACOR (Association of Cancer Online Resources). ACOR sponsors "159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders." It's a great starting place for support for cancer patients and their family and supporters.Susan Chttps://www.blogger.com/profile/12178330935523896363noreply@blogger.comtag:blogger.com,1999:blog-9110153203470551170.post-52252177092275898452009-01-29T14:47:00.000-08:002009-01-29T14:47:00.000-08:00Actually Susan, as a fellow MCL-er, I think the MC...Actually Susan, as a fellow MCL-er, I think the MCL group with the spreadsheet of patients, treatments etc. is the ACOR one ... :)<BR/>http://listserv.acor.org/archives/mantlecell.html<BR/><BR/>But they are a wonderful support, aren't they. And there is a Yahoo MCL list too ...susiegbhttps://www.blogger.com/profile/11676716409243787432noreply@blogger.comtag:blogger.com,1999:blog-9110153203470551170.post-56883965901854302342009-01-29T13:43:00.000-08:002009-01-29T13:43:00.000-08:00Can we start a group for people who are getting ob...Can we start a group for people who are getting obsessive about checking their emails. I think I'm beginning to have a serious problem.Margarethttps://www.blogger.com/profile/08668487489667818687noreply@blogger.comtag:blogger.com,1999:blog-9110153203470551170.post-71826541474853113692009-01-29T09:43:00.000-08:002009-01-29T09:43:00.000-08:00Maybe you'll have to join a support group for supp...Maybe you'll have to join a support group for support group junkies. <BR/><BR/>(Wow, do you remember what research was like pre-web? Took a lot of time and skill.)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9110153203470551170.post-84541850765944201742009-01-29T08:47:00.000-08:002009-01-29T08:47:00.000-08:00These groups really are amazing. In my MCL group t...These groups really are amazing. In my MCL group there are several members who have become experts on the latest treatments and clinical trials, best doctors and cancer centers (for this disease), etc. <BR/><BR/>All of the messages are archived, so you research a specific topic. When I found out I was going to have the Hyper CVAD chemo treatment, one of the first things I did was search the archives for every shred of information I could find. <BR/><BR/>The group has even compiled a list of MCL patients, their treatments, relapse rates and about 30 other pertinent fields. For people who love data, it's a dream come true. <BR/><BR/>It's the same with the EOS group. And, in every group, it's amazing to see how generous and supportive the members are.Susan Chttps://www.blogger.com/profile/12178330935523896363noreply@blogger.comtag:blogger.com,1999:blog-9110153203470551170.post-24753158524796973712009-01-29T08:34:00.000-08:002009-01-29T08:34:00.000-08:00Interesting. I didn't know of such Yahoo groups. G...Interesting. I didn't know of such Yahoo groups. Glad you are finding support there. I didn't even know that such a condition exists, and I imagine you run into that a lot in the general public.Ronni Gordonhttps://www.blogger.com/profile/00036024135497392070noreply@blogger.com